Category: News

Out and About

This is one of my favorite times of year at The Kansas City Art Institute. The campus is filled with a frantic creative energy. I’m really bummed to be missing it this year. This weekend is the end of semester shows, all of the departments on campus get to show off the top work of their students, much of it for sale. We always find a few treats, and this year was no exception.

I did manage to get out for a little while of Friday night to see a few departments. My friend Erich and I met my coworkers just before five in our offices in Mineral Hall. When I got there, they were acting a little strange, like they didn’t want me to see something. I just wanted to go back and see my desk because it’s been so long, but they were subtly trying to get me out. I managed to sneak past and found this:

Foiled

It was very good to get out and catch up with a lot of the faculty, staff, and students at KCAI. I feel very lucky to work with such great caring people – no other job has felt so much like home.

Maura and I went back on Saturday so that she could see the shows, since she spent Friday night in Illustration. My head paying the price for being out Friday night but it wasn’t as bad and I had feared it would be. It’s mostly a lot of pressure with stabbing pains every once in a while. Several times Friday night, I would cringe mid-sentence, the pick up where I left off; I’m sure it looks strange. Saturday was the same, although later in the day it was getting worse, with more constant headaches. This morning is much the same. I slept okay last night, although I woke myself up out of zombie dreams several times. I’m sure I’ve developed a higher tolerance after six weeks of headaches. I’m really hoping to get back to a somewhat normal life next week. I see the neurologist on Monday and I hope to go back to work by the middle of next week. I’m anxious to hear what suggestions the neurologist will have for me.

More Waiting

I’m in my sixth week of recovering from the DAVF embolization – sitting around at home doing very little. The few times I’ve gone out, I’ve paid for it later with worse headaches.

I hate to complain, there are times that six weeks of nothing sounds dreamy, but I’m more than ready to get back to real life. As much of an introvert as I am, I miss being around people – I think I’m pretty much fully recharged at this point. I must admit, it took four weeks for me to rally start getting stir crazy. Though I was pretty drugged up for the first three.

As long as I take it easy, the headaches are tolerable. It’s when I try to do much of anything that they get bad. If I can find something to concentrate on, I can tune them out. I’ve been reading a LOT. I lost count of how many books and comics I’ve read over the last few weeks. Also, some TV shows and movies, when I can tolerate the sound. One thing I miss a lot is listening to music. There have been several new releases that I have queued up, but haven’t been able to listen to without pain.

I see a neurologist on Monday, less than a week away now. I’m really hoping that she can help me deal with the pain.

MRI & MRA

I spoke with my neurosurgeon’s nurse practitioner today. They’ve scheduled me for an MRI and an MRA on Monday to hopefully figure out why I’m still having these dang headaches. I should have the results pretty quickly, my neurosurgeon wants to look at them before he leaves town next week.

Round three

We just got back from meeting with the neurosurgeon. He’s prescribing yet another round of steroids. Basically, my brain is having trouble dealing with the major changes caused by the procedure. He told us that the impact of the fistula was one of the most extensive he’d seen – a lot of veins in my brain were affected by it. He’s still pretty sure he got it all, but I’m going to have another arteriogram in six months to make sure.

My brain is having to deal with some major changes and it’s not happy. The steroids reduce the swelling which helps with the headaches. In the images he showed us, before and after, you could see a serious decrease in blood flow in the affected areas. The difference was drastic. I could also see the area that he glued.

If I’m still having headaches after the this third round, I’m going to schedule an appointment with a neurologist to develop a strategy to deal with the pain. He said it’s possible that I’ll be dealing with these for an extended period of time, possibly the rest of my life.

Today in the waiting room with all of the sounds, people talking, coughing, sneezing, phones ringing, etc. was nothing short of torture.